Mithun Chauhan, 16, is covered in large swollen lumps, and his condition has convinced himself he is destined to wander through life alone.
He spends his life inside his home in Navada in Bihar because his misshapen face terrifies the locals, who have branded him ‘Ghost Boy’.
And he cannot go to school because other children flee at the very sight of him.
He asked: “Why have the Gods condemned me to a life like this?
“It is because of my looks that my childhood friends have abandoned me. Now nobody wants to play with me.
“It because of my looks that I cannot go to school or simply take a stroll in the neighbourhood.”
His family claims the sores spread across his body after a ‘quack doctor’ in Bihar state gave him the wrong medicine to treat a painful mole when he was five.
The swelling around his face grew so severe that he struggles to eat, see and breathe.
His father Ramji Chauhan said: “After taking the medicine, my child’s face started swelling. His entire body turned red like copper.”
Mr Chauhan and his worried neighbours feared the gods had ‘cursed’ the boy, so they prayed every day and performed every ritual they could think of to cure him.
It was not until recently when they took him to medical expert Dr Ashwini Dash, that he was diagnosed with neurofibroma, a very rare genetic disorder that causes tumours to grow along your nerves.
There is no known cure for the severest form of the disease, which afflicts around one in 33,000 people, but Indian doctors believes Mithun can be cured.
Dr Dash said: “It only warrants surgery if obstruction of eye, mouth nose or natural orifices obstruction is there.”
Mithun’s parents are desperate for him to get an education but until his condition is treated no schools will accept him as a student for fear he “would scare away the normal kids”.
He was admitted to a local primary school aged eight but on his first day, the children were revolted by the sight of him.
Mithun said: “They called me a ghost and started running for their life as if they had a seen a real one.”
And unlike his carefree childhood friends who abandoned him, he cannot even bear to look at his own reflection or go out in public.
He said: “I am really scared of the image that I see in them… I usually stay at home during the day to avoid people.
“If women and children see my face, they freak out and run away saying, ‘Ghost! Ghost!’
“My parents have forbidden me to go out at night as people tend to get more scared of seeing my face at night.
“I spend most of my time alone at home. I have no friends.
“There is no one to talk to. I don’t know what the point of my life is.”
One medical expert, who did not want to be named, said Mithun’s illness is treatable.
He said: “The operation, which would be done in phases, would cost at least Rs 300,000 rupees (£3,500).”
Doctors have told Ramji to take his son to more advanced facilities in Delhi or Mumbai but he barely earns enough to feed his family.
The heartbroken father told: “The condition has robbed him of his childhood already.
“It is very painful to see and hear people hating your child for his physical appearance and calling him a ‘ghost’.”
News Source: Express